Running 13.1 miles for A cure!
I run for her
A wonderful friend of mine, Mari, had given birth to an incredible little munchkin Lilliana while we were in England together. Lilliana wasn’t just any little girl, she had an amazing spirit, a fighting one at that. You see, this little girl had started this life with challenges and continued to have them as she grew. Just after 1, lilli was diagnosed with Williams Syndrome, and then a few years later she would be diagnosed with Rhett Syndrome. She is the only documented case of her kind in the world. With these two disorders, Comes respiratory issues, seizure disorders, and several other unfortunate complications. Mari sought out several support groups and found GP2C, an incredible group raising money to fight for a cure for Rhett Syndrome! And they are getting incredible close!! Please help me raise funds for this incredible group and their strong girls in their fight to cure such a dibilitating disorder. I run for them, I run for our, Silly Lilli!!!
My Supporters
- Emma Woloszyk May 2019 $50.00
- Emma Woloszyk May 2019 $50.00
Help me run for a cure for Lilliana!!
I have registered for the Disney Princess half marathon next February! In doing so I’d like to raise money to help fight a cure for Rhett Syndrome. Help me run for a cure for Rhett Syndrome! Help me run for her!!