In February 2020, I have the privilege to run the Fairy Tale Challenge on behalf of a girl I'm lucky to know and love Lily McGee and for those who can't with Rett syndrome. 

Rett syndrome is a rare, non-inherited genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, including seizures, scoliosis, and digestive difficulties. It affects nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Children with Rett syndrome understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions. 

I am excited to be running 19.3 miles on behalf of Lily. She is a strong, happy, smart, and very loving girl. Behind every strong Rett Girl is a family just as strong. Lily’s family consists of her loving, caring, and supportive mother Nicole and father Todd. They are from Yarmouth Maine. Not only is Lily an inspiration, but so is her family. The McGee family and myself have remained resilient and dedicated in finding a cure not only for Lily, but for all children. I hope to make a difference in the lives of all affected by Rett Syndrome and their families by representing this team in this race and many more to come!

I am honored to be apart of such an amazing team and help support all these amazing families. Help us continue the fight to cure Rett Syndrome as Team Girl Power 2 Cure is on their 9th year at the Disney Princess Half Marathon Race Weekend.