My Personal Fundraising Page / Ma page personnelle de collecte de fonds
Message en francais ci-dessous / Message in French below
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Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.
Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.
Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.
Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery.
Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.
Researchers at Harvard, Baylor, UVA, Weill Cornell, Emory, Salk Institute, University of Edinburgh and dozens of other top-notch institutions are delving into Rett Syndrome.
Not only will their work help thousands of children and adults worldwide, but their findings have a direct impact on research on Autism, schizophrenia, bipolar disorder, Alzheimer’s and many other disorders.
In essence, our kids may hold the key to a cure for millions of people suffering from dozens of disabilities.
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Aidez-moi dans ma collecte de fonds pour le syndrome de Rett, une maladie degenerative grave qui affecte surtout les filles, mais qui peut aussi toucher les garcons. Je vais courir 10 km pour ces enfants courageux qui se battent chaque jour avec cette maladie. Je le fais en l'honneur d'une petite fille avec qui j'ai eu la chance de travailler. Merci de m'aider a amasser 600$ (ou plus!) pour ma course! Chaque don compte et est important, peu importe le montant.
My Supporters
- Maryse Robidoux Bonne course, Isabelle! Bravo pour tes efforts! February 2020
- Véronique Leduc Bravo Isabelle pour cette inspirante implication! November 2019 $20.00
- Anonymous September 2019 $35.00
- Marianne Massé September 2019 $20.00
- Philippe Surprenant September 2019 $20.00
- Anonymous August 2019 $125.00
- Christian Masse Anuses toi bien! August 2019 $75.00
- Karen Beazley August 2019 $50.00
- Maryse Campeau Félicitations pour ton engagement! Ça me fait plaisir de soutenir la cause qui te tient à coeur! August 2019 $50.00
- Anonymous September 2019 $35.00