I will be running the 5K & 10K with Team GP2C in honor of Courtney and all those effected by Rett.  Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.  

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can also affect boys! It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are smart, strong, and waiting bravely for us to unlock their own bodies they are trapped in! 

We will never give up hope, we will continue to fight.  We are so close!  Gene therapy trials are scheduled to start next year as per the sponsor, AveXis/Novartis!

** Your donation is tax deductible and GP2C fundraising proceeds will be going to Rett Syndrome Research Trust, who paves the way for our current and future research efforts, clinical trials etc. 

You can find more information on who/what Rett Syndrome Research Trust is about at: reverserett.org.  You can also follow the past/current clinical trials for Rett Syndrome at ClinicalTrials.gov.  The gene therapy trial will be posted there as well once it is opened for recruitment!

Thank you so much in advance for your help to end Rett!