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Jjo

On April 7th, 2014 our pretty princess entered our lives and we were SO EXCITED! When Jo arrived however, things didn't go as expected. After a difficult dilivery, mulitple ex-rays, and IV's her primary care physician sent her off to Children's Hospital in St. Paul to meet with Dr. Malone (ENT). We went down to radiology to have a swallow study conducted because Jo didn't make much noise and when she did it was high pitched and sounded as if she was in pain, she would also feed for 3 hours at a time and still be hungry. The swallow study showed that all the fluid was going into her LUNGS and NOT her stomach!! Jo was admitted immediately and we found ourselves living in the NICU in St. Paul for a month and a half. She was diagnosed with severe case of Laryngomalacia which is where the soft cartilage of the upper larynx collapses inward causing airway obstruction. Jo received a G-tube and was sent home on a feeding machine. Jo graduated to drinking honey-thick liquids which was a great step forward! However, Jo was then diagnosed with Asthma and we spent multiple hospital stays at Children's until we were able to develop a care plan that works for her. Today she has no eating restrictions and we are hopefully getting the tube removed this summer! As far as her asthma, it is under control and we haven't had any emergency room visits in a year and a half!! Jo is defiantly on the up and up, and we want to say thanks to everyone who supported Team Jojo during our difficult time! We couldn't have done it without our supporters; family, friends, doctors, and the St. Paul Children's NICU!!

 

 

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