Sponsors

How to Participate:

1. Register Today!

2. Create a Team: Create a team of co-workers, friends, and family members, or register as an individual walker! Register online to create a personalized fundraising page with your story and photos, making it easy to grow your team and/or fundraise. Register as a virtual walker or launch your virtual team if you can't join us in person, and commit to run or walk in honor of someone with Smith-Magenis Syndrome. If you don't want to create your own team, you can join an existing one OR register as an individual!

3. Raise Funds: Set individual and team goals! Use the easy online fundraising tools to spread the word.

4. Celebrate! Enjoy the day and celebrate the research opportunities you have created for individuals with SMS and their families.

2019 LA Walk for SMS

Please join us for our 8th Annual 5K Walk for Smith-Magenis Syndrome (SMS) to raise awareness and research funding to treat this rare disorder. Our event happens to coincide with SMS Awareness Day this year!

We are grateful for an anonymous donor who is willing to match all donations up to $25,000! Please help us take advantage of this amazing opportunity to double our fundraising goal! 

Sunday, November 17, 2019

Location: Clover Park

2600 Ocean Park Blvd, Santa Monica, CA 

9:00 - Check-in begins

10:00 - Opening remarks & group photo

10:15 - Start walking!

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Adult registration - $40 

Child registration - $15

Registration includes a t-shirt, lunch, & water.

PLEASE NOTE: T-shirts will not be guaranteed for registrations made after November 1st.

If you have any questions or need additional information, please contact Susan Diamond at susan@smsresearchfoundation.org.

About Us

We are Susan and Paul Diamond, and our 14 year-old son, Jeremy, was born with Smith-Magenis Syndrome (SMS), which occurs in 1 out of 25,000 births. Living with this disorder presents severe challenges with sleep, development, and behavior. There are only a few SMS researchers around the world, and there are no viable treatment options yet.

The SMS Research Foundation (SMSRF), however, is making significant progress toward a gene therapy treatment. In partnership with Baylor College of Medicine and Sanofi Pharmaceuticals, gene therapy could either replace the most critical missing gene, or improve its expression, and improve the quality of life for those living with this disorder.

If you cannot make it to the walk, we hope you would please consider a donation to support the SMSRF's gene therapy project.

Thank you in advance for support! 

Our Newest Participants

  • Jacqueline Rose Jacqueline Rose
  • Marilyn Wiener Marilyn Wiener
  • Laurie Brumfield Laurie Brumfield
  • Maya Nikoukari Maya Nikoukari
  • Matthew Soria Matthew Soria
  • Omar Soria Jr Omar Soria Jr
  • Omar Soria Omar Soria
  • Janet Rojo Janet Rojo
  • Brooke Patel Brooke Patel
  • Katherine Patel Katherine Patel
View All

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"Virtual Walker"

This year we are offering the option to register as a “virtual” walker. When you sign up for this option, you commit to run or walk in honor of someone with SMS even if you cannot be present at the walk.

Your activity can be any distance you want: walk/run/crawl 3.1 miles in your neighborhood, or 31 laps around your block, or just 31 yards down your street. Get creative and have fun! Then, post photos of your walk on the SMS Research Foundation Facebook page!