Luke is 4 years old, full of curiosity and learning to navigate the world with Pitt-Hopkins syndrome—an ultra-rare genetic condition that affects communication, mobility, behavior regulation and overall development. Like many children with Pitt-Hopkins, Luke faces challenges with safety, emotional regulation, and independence, especially as his world grows bigger.
We are excited to raise support for something that could truly change his day-to-day life! By supporting this journey, you are helping provide safety, independence, emotional regulation and opportunity. You are helping give Luke a trusted partner who can walk beside him through life, offering stability, confidence, and support every step of the way.
Thank you for walking alongside our Lukey boy, cheering him on and supporting our family as we work to give him the safest, fullest life possible!