OUR MISSION

We have a small staff with a BIG MISSION: To improve the lives of individuals living with this rare genetic kidney disease through education, empowerment, and direct investment in research.  Ultimately, as a united and engaged group of patients, we are helping lead the way toward new therapies and/or a cure.  

 

HOW TO GIVE

We accept & appreciate:

  • Gifts made online
  • Checks sent to our address below.
  • Gifts of stock 

For questions or instructions:

info@alportsyndrome.org

(480) 800-3510

Mailing Address:

Alport Syndrome Foundation

P.O. Box 4130

Scottsdale, AZ 85261

Tax Free ID# 20-8237159

HOW YOUR GIFT MAKES A DIFFERENCE

Our Annual Campaign is the primary source of support to sustain and grow our work. Gifts to this campaign:

  • Keep our membership, educational resources, programs, projects and events FREE for everyone. 
  • Meet the needs of patients and famiies every day that reach out to our staff for information, education and support. 
  • Sustain our growing research activities such as our Patient Registry, Patient Biosamples/natural history study, leadership of an international human data collection and analysis project in partnership with the FDA, and more. 
  • Build awareness among the medical community about our rare disease including diagnosis, treatment, and research. 
  • Support the needs of pharmaceutical and biotech companies that are exploring potential new therapies for Alport syndrome.

Watch a Video from Members of Our Community

Click here to see all of the ways ASF supports our community and how you can get involved!

Gifts of every size make a difference!

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Our Goal: $200,000

$209,726.18

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