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Amelia's story

Our sweet Amelia was diagnosed with Phelan-McDermid Syndrome in October 2022. We joined a new parent support group through PMSF within a couple of weeks. I couldn't even talk during the first couple meetings. I just cried. This organization has given us support when we felt alone. They've given us information to manage our expectations, get the right supports, and advocate for Amelia's needs. The PMS journey can be a difficult one but the PMSF makes it just a bit easier. We support them every opportunity we can. 

Thank you for donating in Amelia's name. The money helps support other new families but also helps give us hope for treatments in the future. 

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