Meghan’s story began before she was even born, when we learned she had complex congenital heart defects, including Ventricular Septal Defect (VSD) and Double Outlet Right Ventricle (DORV). Like many families facing a congenital heart disease (CHD) diagnosis, we were overwhelmed with fear and uncertainty about what her future would hold.
During her first year of life, Meghan experienced heart failure and was eventually brought home with the support of a pediatric palliative care team focused on keeping her comfortable and surrounded by family and friends. Doctors prepared us for the possibility that she might not live past six months. It was one of the most heartbreaking and uncertain seasons of our lives, but God had other plans.
Meghan continued to fight. After months of close monitoring and medical care, she underwent open heart surgery shortly after her first birthday. Watching your child go through such a major procedure is something no parent can truly prepare for, but Meghan showed incredible bravery and strength every step of the way.
Because of advances in CHD care and the dedication of her medical team, Meghan continues to grow and thrive. Today, she fills our home with joy. She loves dancing, especially ballet, enjoys reading books, running around the house, and is currently obsessed with Gabby’s Dollhouse.
The Children's Heart Foundation was founded in 1996 and is the country's leading organization solely dedicated to funding congenital heart defect (CHD) research.
Our mission is to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.