Fundraising for the CJD Foundation
Jill Canuel & The GGB4 Foundation in Memory of Garry G. Buttermann IV
Garry G. Buttermann IV Memorial Grant for Prion Disease Research
At the age of 39, Garry died from prion disease. Garry was a young, vibrant, entrepreneur, getting ready to begin a new journey as a professor at Florida Tech, engaged to the love of his life, an avid golfer, cyclist, baseball player, pick-up basketball player, and life-long friend to many. Yet, unbeknownst to anyone, an incurable prion disease was stealing him away. Garry didn't show signs that something was wrong until the spring of 2010. He was unable to get a diagnosis until one week before he died. Garry died July 15, 2010. Prion diseases are rare, neurodegenerative diseases. There is no treatment for prion diseases. They progress rapidly, are difficult to diagnose, and are always fatal.
TeamBUTTER is a group of family and friends of Garry Buttermann IV who through mud, sweat, and tears raise awareness of CJD and other prion diseases. Each summer, TeamBUTTER hits the mud again to work together to spread CJD awareness, conquer obstacles, and celebrate with each other. There have been TeamBUTTER sightings across the world wearing their team shirts hiking, running 5Ks, Tough Mudders, and family mud runs. Golfers in Ireland were sporting official GGB4 golf balls. How cool is that!
TeamBUTTER has been raising money to support the Garry G. Buttermann IV Memorial Research Grant for Prion Disease Research through the CJD Foundation / Creutzfeldt-Jakob Disease Foundation. We have awarded almost $50,000 over the last 9 years. As of June 2024, we are $6500 away from reaching our goal of $10,000 for the 2024-2025 grant. Please help support these important research grants by donating on this page. And if you have a TeamBUTTER shirt, please wear it on Saturday, July 27 as TeamBUTTER hits the mud again! Thank you!
Grant recipient Dr. Charles Mays, Dad, and Jill (Garry's sister) in Washington, DC
Raising awareness through pamphlets, bracelets, and t-shirts
Some old friends of Garry's at the annual golf scramble
Tough Mudder Atlanta
Tough Mudder Kentucky
Lil Tough MudderBUTTERs
Tough Mudder Kentucky the next year!
CJD Conference Washington, DC
$11,918.82
achieved
$17,000.00
goal
of your goal reached
My Supporters
- Robert Biagioni Last month $100.00
- Lisa Purvis In memory of Garry G. Buttermann IV to help fund research. Loving thoughts to his family and friends. Respectfully, Lisa & Troy September 2024 $200.00
- Max Wineinger August 2024
- Bob and Tana Harris August 2024
- Bruce Ogle August 2024
- Jill Canuel October 2021 $5,000.00
- Jill Canuel October 2021 $845.00
- Jill Canuel October 2021 $700.00
- M Hesham Kalla Love the family and loved Garry! July 2021 $530.00
- Lisa Purvis In memory of Garry G. Buttermann IV to help fund research. Loving thoughts to his family and friends. Respectfully, Lisa & Troy September 2024 $200.00