Thank you for your interest in hosting a fundraising event in your community for the benefit of the CJD Foundation!  The CJD Foundation and the families we support deeply appreciate your effort to raise funds for our shared cause.

It's so easy to start a fundraiser, you can make a huge impact!


All fundraising event/promotions for the benefit of the CJD Foundation must be approved in advance. Please complete the Event Request Form and submit it to the CJD Foundation no less than 60 days prior to the proposed promotion or event start date before approval can be granted. If needed, special time accommodations to the 60-day period can be requested by contacting the CJDF at 800-659-1991 or

The CJD Foundation name, logo, or mission may not be used in any way without advance written approval from the CJD Foundation.

If you'd like us to promote your upcoming fundraiser, contact us. Be sure to send us your event pics so we can share them online and via social media!

Recent Activity


Creutzfeldt-Jakob Disease (CJD) is a rare, rapidly progressive neurodegenerative disease, one of several Prion Diseases caused by prion proteins that misfold in the brain.  There is no treatment or cure and the disease is invariably fatal.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research.  We carry out this mission through:

  • Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series
  • Education and information for families, caregivers, medical professionals, and funeral professionals
  • Advocacy with political representatives and public policy makers
  • Annual Family Conference that brings together affected families and prion disease experts
  • Family Workshops held around the country
  • Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
  • Research grant program, with international awardees selected by our Scientific Advisory Committee


When signing up to become a fundraiser, you can create a personal fundraising page just for you. This page will allow you to spread the word about your fundraiser. Using this fundraising page you can email friends, family and colleagues easily. Tell them why the Creutzfeldt-Jakob Disease Foundation is so important to you. Encourage them to visit your fundraising page and support your efforts!

Be creative - the sky is the limit!

Here are some ideas to help get your creative juices flowing:

  • Host a party and send out invitations. Whether it's a birthday or an anniversary, tell your guests not to bring a gift, instead direct them to your personal fundraising webpage and have them make a donation to the Creutzfeldt-Jakob Disease Foundation.
  • Doing something adventurous? Stepping outside the box? Ask your friends and family to support you by making a donation on your webpage.
  • Hold a golf outing, a walk or a run.  Participants can register and donate right on your webpage.
  • Collect donations in memory or in honor of a loved one.

    All events are subject to pre-approval by the CJD Foundation.