My 9-yr old niece and Nili's cousin Charlotte lives with a rare genetic condition called Collagen 6-Congenital Muscular Dystrophy.
Nili and I are running the 2nd annual Charlotte Maltzman Swick Half-Marathon + 5K Beach Run w/ Beer and Ice Cream After Party on June 15, 2025 (Father's Day).
Cure CMD is a U.S. registered 501(c)3 nonprofit organization that focuses solely on Congenital Muscular Dystrophy and our donations will be allocated towards her subtype-specific research, treatments and support. Every donation—big or small—helps us reach our fundraising goal and directly impacts this important cause.