Cure CMD's 2026 Giving Campaign

We Need Your Support Now More Than Ever

Ongoing federal funding cuts to institutions like the NIH threaten the pace of scientific advancement, making community-driven investment more vital than ever.

Your support today ensures that Cure CMD can increase its research grant-making capacity in 2026, fueling the studies and innovations that keep hope moving forward.

Together, we can keep this momentum alive. Give now.

In anticipation of awarding our next group of research grants in 2026, Cure CMD shined a spotlight on the people behind the breakthroughs in our Researcher Spotlight Series on Youtube. We highlight the CMD researchers whose passion and perseverance are unlocking new possibilities for every person living with congenital muscular dystrophy.

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$50,570.90

achieved

$650,000.00

goal

Join Our Mission

Cure CMD has funded more than $4M in research across 70 projects, assembling some of the brightest scientific minds from around the world to identify treatments and optimize care for CMD. We provide educational resources and support to families navigating this journey, to ensure they have every chance for a successful future. And most importantly, the voice of the affected community is at the heart of everything we do.

Support Global Programming

This fund supports global programming, like the Congenital Muscle Disease International Registry, Community Resources, Legislative Advocacy Team, Scientific and Family Conference, and yes, administrative and fundraising costs that ensure the long term health and sustainability of Cure CMD. In short, this fund provides the crucial foundation for executing our mission. Consider supporting these activities that benefit the entire CMD community by contributing to this fund.

Support a Subtype Campaign
Collagen 6 | Dystroglycanopathy
LAMA2 | LMNA | SELENON

You may allocate your gift to one of our five subtype funds, as well as family funds dedicated to a specific subtype. Donations to these funds help drive our mission agenda, including research grant funding, attending scientific meetings & conferences, and relationship building with researchers, clinicians, and industry. A portion of these funds also support global programming.

Our 2026 Programming

In 2026, we’re advancing urgent, family-driven programs that improve care and accelerate progress toward treatments. With your support, we will continue driving meaningful progress toward our mission for families living with CMD.

We’ll host a series of virtual Ask the Expert events, where leading CMD clinicians and researchers answer your most pressing questions live.

We’re launching a new round of research funding to drive innovative CMD science, break-
down barriers to treatment discovery, and bring hope to the global CMD community.

We will develop and share clear, subtype-specific care recommendations, created with the world’s leading CMD experts, to help families and care teams make informed, day-to-day care decisions.

Develop a multimedia care guide app, informed by updated subtype-specific care recommendations, to help families and emergency providers quickly access critical CMD care information when it matters most.

Amplify the voices of the CMD community through national advocacy, including representation at Rare Disease Week on Capitol Hill, to advance disability rights, equitable access to education, employment, transportation, healthcare, insurance coverage, and sustained federal investment in CMD research and treatment development.

Deepen connection across the CMD community through ongoing social support, peer-to-peer matching, and virtual programs that bring families together.