Dear Friends,

What an incredible day! On behalf of Daniel, our family, and RSDSA, thank you from the bottom of our hearts for being part of the very first D-Shee by the Sea Walk. Because of your generosity and support, we are thrilled to share that the walk raised $11,700 to provide support, education, & hope for those living with CRPS.

A special thank you goes out to the Sharon Weiner, Executive Director and Mary Beth Kenny Ludington & Hank Ludingon, Co-Presidents of RSDSA for joining us and walking alongside our community on Sunday. Your presence and leadership made the day even more meaningful.  I will be forever grateful to Alisa Tammaro for her friendship, knowledge and guidance every step of the way (literally).

Daniel summed it up best when he said, “This was my best day of 2025!” ??

We are so grateful for each of you who donated, registered, walked, and spread the word. Thank you to all who traveled near and far to make this day extra special for Daniel. Your kindness and energy created a day full of hope, love, and community.

We look forward to gathering again for the next walk in 2026 and continuing this important mission together. Until then, please know how deeply we appreciate you being part of this journey with us.

With heartfelt gratitude,

Maryellen Sheehan

My name is Daniel Sheehan, and I am writing to share my personal journey with Complex Regional Pain Syndrome (CRPS).

In June of 2020, after a series of surgeries following injuries I sustained while playing college football, I developed CRPS, a condition often referred to as the most painful chronic illness known to modern medicine. It’s a disease that rewires the nervous system, often turning even the lightest touch into burning, unbearable pain. It changed everything—my body, my future, and my daily reality.

Living with CRPS is a constant battle, one that’s invisible to most and misunderstood by many. But I refuse to let it define me in silence. That’s why I’m partnering with RSDSA—to help raise awareness, support groundbreaking research, and ensure that others facing this illness don’t feel alone, dismissed, or hopeless.

This event isn’t just about fundraising—though every dollar helps move us closer to better treatments and, someday, a cure. It’s about making CRPS visible, honoring the strength of those who live with it every day, and showing the world what it means to fight for your life, even when no one can see the battle.

Together, we can shine a light on this condition, support those living with it, and remind each other that even in the darkest pain, there is hope for a better life.

Let’s ride the wave of change together!
#DSheeByTheSea #CRPSAwareness #RSDSA

Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD), is a rare, debilitating neuro-inflammatory condition. It often leaves its victims in excruciating pain, requiring care from multiple medical professionals, and dependent on family and friends to accomplish the tasks of daily living. 

CRPS often develops after a fracture, sprain, surgery, or other, even minor, trauma to the body. It has the highest rated pain (42 out of 50) on the McGill Pain Index, a scale that physicians use to measure and compare pain. It is rated more painful than amputation of a digit without anesthesia, childbirth, and even non-terminal cancer.

In addition, the pain of CRPS is unrelenting and is experienced 24 hours a day, 7 days a week. Often, those with CRPS cannot even be touched by their loved ones because the pain is so excruciating.

Since CRPS is a rare disease with less than 200,000 people in the United States diagnosed with it; there is little incentive for pharmaceutical companies or the medical community to address underlying causes or to develop effective treatments.

For many individuals, this results in a progressive worsening of symptoms, disability and a life of unbearable pain.