My Personal Fundraising Page

Our Story!

Welcome to our page! In February, I will be running a 10K at the Disney Princess event on behalf of our daughter Juliana! If you know me, you know I'm not much of a runner most days, well all days but that's not going to stop me! Juliana was diagnosed with Rett Syndrome in 2008, a debilitating neurological disorder that affects her ability to walk, talk, use her hands as well as causes seizures, digestive and sleep issues. Despite all of these challenges, she fights!

We are hopeful because Rett Syndrome is one of the few disorders that will likely be cured in the very near future. Research has reversed Rett Syndrome in the lab and a genetic therapy clinical trial on humans begins this year! You can imagine how excited we are but until then, we keep her ready; ready for a cure someday by helping her be the 12 year old she loves to be!

As part of my run, I am raising money to support the incredible research underway and any size donation helps us get there. All you have to do is click that purple Donate Now button. One look into her eyes, her tenacity and determination comes through and she has taught many around her so much. Along this journey, she's taught us humility, unconditional love, compassion, determination, patience and understanding. Her drive and will is incredible and I run so that one day she can too!

Thanks for visiting our page and stay posted to see if I make it! I think I will, there's no other option, right? Much love to our incredible network of friends and family who continue to support not only Juliana but the thousands across the world fighting just like her!

Now- let's rock n' roll!

To learn more about all that we are doing, go to:

Girl Power 2 Cure, Inc.- www.gp2c.org

Rett University- www.rettu.org- https://youtu.be/7Tv_Rsl96cw

Rett Girl!- www.rettgirl.org

 

Making impact for today and tomorrow!

$352.25

achieved

$5,000.00

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My Supporters

  • Laura Monteleone February 2019 $100.00
  • Ray Benavides February 2019 $50.00
  • DAVID WEAVER February 2019 $50.00
  • Roger Brooks Thanks Uncle Danny! February 2019 $25.00
  • Roger Brooks From Omi! Thanks Omi! February 2019 $50.00
  • Laura Monteleone February 2019 $100.00
  • Roger Brooks Thank you Uncle Eddie! February 2019 $75.00
  • Ray Benavides February 2019 $50.00
  • DAVID WEAVER February 2019 $50.00
  • Roger Brooks From Omi! Thanks Omi! February 2019 $50.00