Hi everyone! Can you please help me raise funds for a cure for Rett Syndrome as I run in the Disney Princess 10K? I will be running with Taylor and my mom's help ( I like to go fast so this should be fun for them ?)   Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome. Thank you so much!  

Rett Syndrome is a debilitating neurological disorder that predominantly affects females (but can also affect boys). Rett Syndrome is the leading genetic cause of severe neurological impairment in girls and is characterized by a single gene mutation that leads to underproduction of an important brain protein known as MECP2.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Most lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications also include seizures, scoliosis, and the potential for sudden death.

Despite our physical disabilities, girls and boys with Rett Syndrome function at a similar cognitive level to our peers. Amidst the mass confusion in our central nervous systems, we are smart, strong, and waiting bravely for us to unlock the door to a cure and our recovery to live our best lives.

Today, there is no cure. But Rett Syndrome is potentially CURABLE! Lab experimental treatments have proven that once MECP2 protein levels are restored to normal levels, symptoms subside!