Like most other families, Dravet Syndrome hit us out of the blue. Completely unexpected. During pregnancy, labor, all the way up to 5 months Kenidee was absolutely perfect and healthy. Until she had her first seizure that lasted over an hour long. While admitted at the children's hospital the neurologist requested to do a genetic panel. The seizure Kenidee had was not a typical febrile seizure commonly seen in infancy. We agreed. We wanted answers. After several weeks and several seizures later and even more hospital trips, we learned that Kenidee had a genetic mutation of the SCN1A gene. This mutation in addition to her severe seizures made it a very easy Dravet Syndrome diagnosis. Kenidee is now almost 3 and her seizures persist. Some with more severity than others. We don't let her difficulties hold her back and neither does she. We are a family of 4, my self (Brandee), husband (Steven), Kenidee and our youngest daughter, Addison. Though very different, our girls are the best things for each other and we thank God every day for sending us Addison in the midst of the storm. We try our best to not live in a box, to not let this diagnosis define Kenidee and our family but it does in a very big way. Traveling for doctors appointments, therapy appointments, evaluations, pharmacy runs, EMS calls, hospital visits, hospital admissions, etc. Through the hardship and difficulties, we pride ourselves on continuing to live life as much as we can. Thank you for being here and willing to learn more about Dravet Syndrome.