Undurable Dura’s Quest to Improve Leaker’s Lives

This fundraiser is to spread awareness of Cerebrospinal Fluid Leaks and raise funds to support the Spinal Leak foundation in an effort to improve the quality of life and further the research for CSF Leaks. This illness is invisible but can be so devastating to those affected by them. Imagine spending your whole day in bed. Sounds like a full-time employee’s dream, right? But imagine you’re in bed all day, completely flat. When you sit up, the pain inside your head is so bad, that most compare it to being hit in the back of the head with a bat. What about the ringing in the ears? So loud and so consistent that it drives many to helplessness from the incessant screech of the tone with no relief. Don’t forget the racing heart any time, and I mean ANY TIME, you sit up. This leaves you breathless, dizzy, even trembling and maybe faint. Your heart rate rises more than 30 beats per minute, maybe even past 100. Eating and showering do it too. Also, your nauseated and vomiting like you just woke up with the flu, but you’ve woken up with that same “flu” for 7 years (sometimes decades). So because of this, you can’t est much and you’ve lost weight and nothing fits, and you can’t keep food or sometimes fluids down. The only thing that keeps these symptoms at bay are being flat in your bed, which now feels like a prison, watching the world go by through a horizontal lens; your kid’s school years and graduation, holidays, major life events. Supporting the Spinal Leak Foundation will help advance research and support conferences for doctors in the field to present and discuss cases in hopes that one day we can end the suffering of everyone who faces this illness. Please consider any donation to help patients like ME.

I'm raising money for the Spinal CSF Leak Foundation!

I’m thrilled to be participating in duradash® 2025, an annual fundraising event for the Spinal CSF Leak Foundation. This year’s virtual fundraiser will run from May 25–June 7, 2025. The duradash® event aims to raise awareness and funds in support of spinal CSF leak research and education, so that more patients living with this under-diagnosed and disabling neurologic disorder are able to receive correct and timely diagnosis and treatment.

The virtual challenge aims for a total of 150 minutes of any activity, to be done at any time, anywhere. The theme is to "start where you are" - to meet people at their current level of ability and encouraging activity meaningful for the individual.

I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts research and funding for this under-diagnosed, debilitating condition.

Here's how you can help:

  • Donate: Contribute whatever you can. No amount is too small!
  • Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
  • Stay Engaged: Check back periodically for updates on my progress to my activity goal! Share my accomplishment far and wide!

Thank you for standing by me in this effort. Your support means the world to me!

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My Supporters

  • Benjamin Englesmith June 2025 $50.00
  • Leah Leavitt Thank you SO much for all you for the leaker community (and other conditions). You are an amazing fierce advocate and I admire you so much!  June 2025 $52.50
  • Leah Leavitt Thank you SO much for all you for the leaker community (and other conditions). You are an amazing fierce advocate and I admire you so much!  June 2025 $52.50
  • Benjamin Englesmith June 2025 $50.00