WHAT IS DURADASH®?

duradash® is a community awareness and fundraising event that takes place annually during Spinal CSF Leak Awareness Week. This year, duradash® is from May 25 – June 7, 2025.

During these 14 days, the Spinal CSF Leak Foundation hosts a virtual challenge to raise funds in support of its mission and educational goals to reduce the suffering of anyone affected by intracranial hypotension or spinal cerebrospinal fluid leak, including via patient and physician awareness of spinal CSF leak — essential for reducing the time between symptom onset, diagnosis, and treatment.

In addition to its commitment to education and awareness, the Spinal CSF Leak Foundation remains dedicated to advancing research that improves the understanding, diagnosis, and treatment of spinal CSF leak, directly impacting the lives of those affected. Funds raised will go toward the Spinal CSF Leak Foundation's general operations, its soon-to-launch international patient registry, the ileak registry℠, as well as providing educational grants and co-sponsorship for conferences such as the Intracranial Hypotension conference and the patient-centered Spinal CSF Leak: Bridging the Gap conference.

This virtual fundraiser is open to everyone who wants to support the cause.

Whether you're a caregiver, friend, family member, coworker of a patient, healthcare provider, advocate, researcher or just someone who wants to make a difference, your involvement, registration, and participation is welcome and appreciated.

Here's how:

CREATE YOUR OWN FUNDRAISING PAGE

With your own fundraising page, you can participate in our virtual challenge and share your story about why you are fundraising in support of spinal CSF leak awareness and research.  The virtual challenge aims for a total of 150 minutes of any activity, to be done at any time, anywhere, What you do and when you do it is up to you—and ANY activity counts, not just physical activity! In previous years, participants logged activity minutes doing crochet, playing video games, creating photography projects, reading to their kids, taking short walks, spending time with their pets, making art while flat, and more.

Our theme is “start where you are,” and our goal is to raise $20,000 for spinal CSF leak research, awareness, and education. We've included a short video here summarizing what duradash® is all about as well. 

To register and create your own fundraising page, click on the white "Register Now" on this page and follow the directions. 

If you need help setting up your Qgiv profile or want our pre-written fundraising templates, go to the duradash® toolkit page for step-by-step guides and resources, as well as graphics and logos for 2025 — and texting, social media, and email templates for you to use when sharing this event with friends and family.

DONATE DIRECTLY TO THE GENERAL DURADASH® FUNDRAISER

If you don't have the time or capacity to create a personal fundraising page, you can also choose to give directly to a patient or make a general gift on the duradash® campaign to support the Spinal CSF Leak Foundation’s work and mission.

Donations are tax-deductible, and every donation helps us get closer to our duradash® fundraising goal and furthers our ability to fund research, support patients, and provide education.

To donate to duradash® 2025, click on the purple "Donate Now" button on this page. You can then select a participant to donate to, or you can click the box that says "No one specifically, just the overall camapign" and make your donation.

SHARE THIS DURADASH® PAGE WITH YOUR NETWORKS TO RAISE AWARENESS

Help spread the word! Share this page with colleagues and loved ones, to help our campaign succeed. You can also use the shortened link https://bit.ly/duradash25 if easier.

Thank you for your help in raising awareness for this debiliating, under-diagnosed condition.