Jen’s fundraising page

As many know, my life suddenly changed in April 2014 with a spontaneous spinal CSF leak (+ an iatrogenic spinal CSF leak). This led to other diagnoses that are all tied together. I have limited functional uptime (sitting, standing, walking); however, I am grateful for the bits of uptime I have, which can vary daily. This year, I will be training my dog Sunshine for Duradash. She is a ~ 4-month-old puppy rescued by ABRA, Inc. a couple of weeks ago. She is still learning the basics of potty training, gaining confidence around people and other commands. I hope she can become a service dog for me, but the first step is helping her find her confidence with positive people experiences. Plus, she’s a snuggler when I’m lying flat (which helps the head pain + other symptoms from the spinal CSF leak). Your donations are tax-deductible and help raise awareness, education, and research for all diagnosed with spinal CSF leaks. Thank you!

I'm raising money for the Spinal CSF Leak Foundation!

I’m thrilled to be participating in duradash® 2025, an annual fundraising event for the Spinal CSF Leak Foundation. This year’s virtual fundraiser will run from May 25–June 7, 2025. The duradash® event aims to raise awareness and funds in support of spinal CSF leak research and education, so that more patients living with this under-diagnosed and disabling neurologic disorder are able to receive correct and timely diagnosis and treatment.

The virtual challenge aims for a total of 150 minutes of any activity, to be done at any time, anywhere. The theme is to "start where you are" - to meet people at their current level of ability and encouraging activity meaningful for the individual.

I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts research and funding for this under-diagnosed, debilitating condition.

Here's how you can help:

  • Donate: Contribute whatever you can. No amount is too small!
  • Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
  • Stay Engaged: Check back periodically for updates on my progress to my activity goal! Share my accomplishment far and wide!

Thank you for standing by me in this effort. Your support means the world to me!

$226.25

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$500.00

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My Supporters

  • Tiffany Rios Always praying for a cure June 2025 $20.00
  • Amanda Wells June 2025 $26.25
  • Staci SUSOTT Jen you are always such an inspiration! Can't wait to see how your new pup does! <3 May 2025 $52.50
  • Amy Segally May 2025 $26.25
  • Jennifer Schoon May 2025 $26.25
  • Staci SUSOTT Jen you are always such an inspiration! Can't wait to see how your new pup does! <3 May 2025 $52.50
  • Amanda Wells June 2025 $26.25
  • Amy Segally May 2025 $26.25
  • Jennifer Schoon May 2025 $26.25
  • Tiffany Rios Always praying for a cure June 2025 $20.00