In recent studies several quality of life metrics for spinal CSF leaks scored even lower than patients with AIDS or cancer.

Last year I was able to raise over my goal by fundraising $527. Lets try to do the same this year! 

Common Spinal CSF Leak Symptoms:

• Head pain that is worse when upright and better when horizontal (but other patterns do occur)
• Nausea and vomiting
• Neck pain or stiffness
• Change in hearing
• Sense of imbalance
• Photophobia
• Phonophobia
• Interscapular pain
• Pain or numbness of arms
• Changes in cognition
• Dizziness or vertigo

This is not a complete list of possible symptoms. Spinal CSF leaks are truly a whole body condition.

To learn more about my story & leaks follow me @yourdisabledbff

I’m thrilled to be participating in duradash® 2026, an annual fundraising event for the Spinal CSF Leak Foundation. This year’s virtual fundraiser will run from May 24–June 7, 2026. The duradash® event aims to raise awareness and funds in support of spinal CSF leak research and education, so that more patients living with this under-diagnosed and disabling neurologic disorder are able to receive correct and timely diagnosis and treatment.

I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts research and funding for this under-diagnosed, debilitating condition.

Here's how you can help:

• Donate: Contribute whatever you can. No amount is too small! EVEN $1 HELPS!
• Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
• Interact with social media fundraising posts: like, comment, etc. It makes a huge difference for the algorithm so more people see it! A free & easy way to support! 
• Join duradash: get even more involved by starting your own duradash or joining my team! Would love to see you do so

Duradash also has an optional virtual challenge that aims for a total of 150 minutes of any activity, to be done at any time, anywhere. The theme is to "start where you are" - to meet people at their current level of ability and encouraging activity meaningful for the individual.

Thank you for standing by me in this effort. Your support means the world to me!