I’m honored to be participating in duradash® 2026, an annual fundraising event for the Spinal CSF Leak Foundation. This year’s virtual fundraiser will run until June 7, 2026. The duradash® event aims to raise awareness and funds in support of spinal CSF leak research and education, so that more patients living with this under-diagnosed and disabling neurologic disorder are able to receive correct and timely diagnosis and treatment.

The virtual challenge aims for a total of 150 minutes of any activity, to be done at any time, anywhere. The theme is to "start where you are" - to meet people at their current level of ability and encouraging activity meaningful for the individual.

As a spinal CSF leak patient who understands the vast impact of spinal CSF leak on patient's lives and on those who love them, I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts research and funding for this under-diagnosed, debilitating condition.

This year’s campaign is also helping support the ileak registry℠, an international patient registry designed to advance research and understanding of this condition. For example, we don't even have a solid grasp on how many people live with this condition, or how many people get "sealed" and feel better with treatment. A registry will help answer these kinds of questions, among many others. 

Here's how you can help:

• Donate: Contribute whatever you can. No amount is too small!
• Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
• Learn and Share Knowledge: The more people who know what a spinal CSF leak looks and feels like, the faster patients living with this condition can be identified, diagnosed and treated. Go to https://spinalcsfleak.org/ and follow @spinalcsfleakusa on Instagram to learn about and get research updates on this condition. 

Thank you for standing by me in this effort. Your support means the world to me!

P.S. If you come to this page after the duradash fundraiser ends, you can always make a donation directly on the Spinal CSF Leak Foundation's website: https://spinalcsfleak.org/