P2020 Picking up the Walk t-shirt at 2nd Annual Flame Out - Extinguish RSD/CRPS Walk
2020 the beginning of 2nd Annual Flame Out - Extinguish RSD/CRPS Walk
2020 2nd Annual Flame Out - Extinguish RSD/CRPS
Judy & her fiance, Dana Iaquinto
The Hopkins Family
2020 Vietnam Veterans of America, Chapter 12
The Inaugural Flame-Out - A Walk to Extinguish RSD/CRPS (2019)
3rd Annual Flame Out - Walk to Extinguish RSD/CRPS
As we begin emerging from the Covid-19 pandemic, life is returning, in small steps, to an evolving normal. What has not changed is the need to support the Reflex Sympathetic Dystrophy Syndrome Association.
Our daughter, Judy, suffers from a disabling, chronic, neuropathic disease called RSD, which is also known as CRPS. Misfiring nerves send continual pain signals to the brain. The McGill Pain Index classifies RSD as one of the most painful disorders, ranking as high as 46 out of 50. It ranks higher than the pain of childbirth and kidney stones. It has been described as more painful than amputation of a finger without anesthesia. RSD patients liken it to your skin being on fire, with no relief.
There is presently no cure for the disease. As an orphan disease, there is little incentive for pharmaceutical companies or the medical community to address the underlying causes or explore treatment options. Only awareness and education of the medical community and the public will result in research and treatment options. That is where RSDSA comes in. As the only national advocate for over thirty years, they need your support.
Please join us as our Pain Warriors step off to remember those who, daily, battle this insidious disease. You will meet some of the bravest and most inspiring people.
DATE: Sunday, September 12, 2021 (Rain or Shine)
TIME: Pre-registration begins at 9:00 am. Walk starts at 10 am.
LOCATION: Joe Palaia Park, Dow Ave & Whalepond Rd (entrance nearest Deal Rd), Oakhurst, NJ 07755
- $25 - Adults
- $10 - Children (12 and under)
- $30 - Day of walk registration
WAIVER: All participants must sign our waiver.
When you join or donate to the CRPS Awareness Walk the funds you raise support:
Our Facebook Lives and conferences unite CRPS Warriors and clinicians to hear about the latest treatment options.
We help our community advocate for healthcare and treatments.
We raise funds for research to find better treatments and a cure.
We provide webinars and conferences to learn about the latest treatment options. We have credited medical online course for doctors and nurses to learn more about CRPS.
Through our online community, mentoring support groups and activities we offer comfort and support to individuals and families. We support children by offering scholarships to Courageous Kids Camp each summer.
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