We are SO CLOSE to a Real Treatment for FOXG1 Syndrome!
We are developing a life-changing Gene Therapy for FOXG1 syndrome—And we’re on track to begin delivering it to children in clinical trials in early 2026!
When Josie was diagnosed with this devastating disease in 2014, I remember being told, “There’s nothing you can do.”
I refused to accept that.
In 2017, we started the FOXG1 Research Foundation—and now, thanks to supporters like you, we’re on the verge of delivering a treatment that could change everything for Josie and children like her.
We’re also making history together— we will be the first rare disease foundation to independently drive a gene therapy into multi-site, International clinical trials.
This final stretch is the most critical of all!
Here’s how you can help:
- Donate!
- Share Josie’s (this) page
- Make Introductions: Know a philanthropist who wants to help make a real impact in children's lives? Please connect us so I can share our presentation on the imapct!
Your support is not just helping Josie—it’s helping all children with FOXG1 syndrome live healthier lives!
From the bottom of my heart, thank you for being on this exciting, and meaningful journey with us.
