Help Josie Bring the FOXG1 Gene Therapy Across the Finish Line

The FOXG1 gene therapy is beginning patient clinical trials! 

Help us bring this treatment to children worldwide. 

When Josie was diagnosed in 2014, I was told, “There’s nothing you can do.” I refused to accept that.

In 2017, we started the FOXG1 Research Foundation. Now, thanks to supporters like you, we’re delivering a treatment that could change everything for Josie and children like her — and paving the way for more rare disease communities to do the same.

This final stretch is the most critical of all.

How you can help:

  • Donate.

  • Share Josie’s page.

 Your support is helping children with FOXG1 syndrome worldwide live healthier lives.

From the bottom of my heart, thank you for being on this journey with us.

 

$68,714.00

achieved

$100,000.00

goal

of your goal reached

The FOXG1 Gene Therapy Campaign

Learn More

My Supporters

  • Johanna DiMedio 3 days ago $500.00
  • Pam Sorin 1 week ago $100.00
  • Jodi Haas 1 week ago $50.00
  • Carrie Israel 1 week ago
  • Christine Chinappi 1 week ago $50.00
  • The Peter and Jeri Dejana Family Foundation January 2026 $25,000.00
  • Gerald L Lennard Foundation Inc December 2025 $10,000.00
  • Lisa and David Newman December 2025 $5,000.00
  • Carole Fabris-Mackie December 2025 $2,500.00
  • Ira Platt October 2025 $2,500.00

SPONSORS

PJD Found- AS Approved-01.png