We are fundraising for Gianna—our beautiful 6-year-old with fox-like red hair and a winning smile, and for all of the wonderful children around the world living with FOXG1 syndrome. Gianna cannot yet walk or talk, she gets virtually all of her nutrition and hydration by feeding tube, and she requires assistance in every aspect of her daily life. She is a blessing to our family, and she inspires us every day with her unflagging joy despite her inability to do most things that her siblings can do. We are raising money to give her and all the children with FOXG1 a better future!
The FOXG1 Research Foundation is a parent-led nonprofit driving a historic effort to bring the first-ever treatment for FOXG1 syndrome—a potentially life-changing gene therapy—to children around the world.
Here’s how you can join the race:
Donate: Every dollar helps!
Share: Spread the word by sharing this page!
Thank you for being part of this movement to help Gianna and all her FOXG1 friends worldwide!
This Halloween, Gianna enjoyed helping to clean out the seeds from our pumpkins—gooey!
Gianna loves to go on walks around the neighborhood while having lunch. She's learning to use her talker outside, which can be pretty tricky with the glare—plus, it's hard to use your eyes to control a computer; it takes a lot of concentration for a six-year-old!