This cause is deeply personal. I’m fundraising in honor of Jess , and for all of the incredible children around the world living with this condition.
The FOXG1 Research Foundation is a parent-led nonprofit driving a historic effort to bring the first-ever treatment for FOXG1 syndrome - a potentially life-changing gene therapy - to children around the world.
Here’s how you can join the race:
Donate: Every dollar helps!
Share: Spread the word by sharing this page!
Thank you for being part of this incredible movement!
When Jess was diagnosed with FOXG1 syndrome, we were given a lot of "nevers." But Jess has spent his whole life proving people wrong.
Today, there is more hope than ever before. The FOXG1 Research Foundation is a parent-led powerhouse that is currently developing gene therapies to "fix" the mutation Jess was born with. We are closer than ever to clinical trials, but we need the funding to get there.
We are raising $3000 to help fund the scientists working on Jess’s behalf. Will you join Team Jess and help us reach our goal?