Help Support the FOXG1 Research Foundation!

Welcome to my FOXG1 fundraising page!

This cause is deeply personal. I’m fundraising in honor of My son, River Crous, who lives with FOXG1 Syndrome, and for all of the incredible children around the world living with this condition.

The FOXG1 Research Foundation is a parent-led nonprofit driving a historic effort to bring the first-ever treatment for FOXG1 syndrome - a potentially life-changing gene therapy - to children around the world.

Major Milestone: On January 24, 2026, the FDA cleared the IND for FRF-001 - giving the green light to begin the first-in-human clinical trials! 

This progress is powered by families and supporters. The Foundation’s “Yes, They Can!” campaign is a $22M effort - $14.5M has already been raised, with $7.5M left to push through patient clinical trials and toward an approved treatment for children with FOXG1 syndrome worldwide.

Here’s how you can help with the final push:

Donate: Even $25/$50/$100 makes a real difference.

Give Monthly: Steady support helps the most.

Share: Spread the word by sharing this page with a few friends! Sharing is powerful.

Thank you for standing with FOXG1 families and being part of this incredible movement! ❤️

$573.36

achieved

$1,000.00

goal

of your goal reached

"Yes, They Can!" The FOXG1 Gene Therapy Campaign

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My Supporters

  • Anelene Crous February 2026 $25.00
  • Jocelyn Lutz February 2026 $73.36
  • Marco Salimbeni February 2026 $25.00
  • Sandra Wheatley February 2026 $50.00
  • Sara Salimbeni February 2026 $50.00
  • Wilco Kanters February 2026 $100.00
  • Jocelyn Lutz February 2026 $73.36
  • Sandra Wheatley February 2026 $50.00
  • Sara Salimbeni February 2026 $50.00
  • Jessie Lucelle Cross February 2026 $50.00

SPONSORS

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