We're thrilled to fundraise on Rare Disease Day 2026 for Kabuki Syndrome Foundation (KSF)! This nonprofit drives research to treatments, improves clinical care, and delivers trusted resources to Kabuki syndrome families worldwide.

Living with Kabuki syndrome means lifelong management of multiple symptoms, some if which can appear later in life. There are no targeted treatments - just a lot of band-aids, unanswered questions, and ongoing appointments for families like ours. Donating to KSF helps unlock transformative treatments and care recommendations for people like Ripley. Watch the video here to learn more about Kabuki syndrome.

Bottom line: KSF is the organization funding research that can help Ripley live her healthiest, fullest life possible.

Here's how you can help:

• Donate today - every dollar counts as we reach for $1000 by March 20
• Share our fundraising page. The more people who are aware and invited to join us, the stronger our community becomes.

Thank you for standing by us, not only today but every day!