The Kabuki Syndrome Foundation has been crucial for Gus.
Ever since Gus was diagnosed, I have relied on the Kabuki Syndrome Foundation to connect me the mini-universe of all things Kabuki - the state of research, available resources, connections to amazing people like Dr. Harris, who we drive down to see in Baltimore every year, advice on all my little mini-Kabuki projects I undertake etc.! Rare Disease Day is Feb. 28 and I hope you will consider donating to their important mission!
I'm raising money for Kabuki Syndrome Foundation!
I’m thrilled to be participating in the Rare Disease Day fundraiser for Kabuki Syndrome Foundation.
This nonprofit drives research to treatments, creates resources for families, and strengthens the global Kabuki syndrome community. Every donation helps me reach my goal and creates healthier futures for our loved ones with Kabuki syndrome.
Here's how you can help:
Donate: Contribute whatever you can. No amount is too small!
Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
Thank you for standing by me, not only today but every day. Please consider donating in honor of Rare Disease Day, February 28, 2026 and all the families impacted by Kabuki syndrome. Thank you.