Patient Stories

Brett's Story

Brett is like many boys his age. He likes playing Xbox, being in Boy Scouts, playing lacrosse and spending time with his rescue dog, MJ. But unlike most 15-year-olds, he’s already faced a significant life challenge: being diagnosed and treated for leukemia.  Read more ...

Delaney's Story

When Delaney was about 18 months old, her family noticed a change: she was limping. But it was minor, she wasn’t in pain, and all her tests looked normal. However, things started getting worse and her family felt more and more helpless.  Read more ...

NICU Promo - 9-9-19 - 470-Edit.JPGFranki's Story

Eleven-year-old Franki is a little ball of fire. Nicknamed “Frank the Tank” by her parents, she has overcome many obstacles in her short life.  Read more ...

Gabby's Story

Gabby is a kind, smart, witty teenager. She’s an honors student who always tries to do and be her best – even when facing an unexpected diagnosis.  Read more ...

Jane update photo option 3.JPGJane's Story

In December 2017, Megan gave birth to a daughter at 36 weeks. Little Jane was healthy, but Megan was readmitted with complications a few days after leaving the hospital. When Megan returned home, Jane had developed a cough and stopped eating. She was rushed to the hospital and began turning blue.  Read more ...

Jessica's Story

Jessica was like any other happy toddler. She was giggly and playful and appeared totally healthy. When Jessica’s parents noticed a growth on her back, the last thing they expected was to hear that their 14- month-old little girl had cancer.  Read more ...

Larry's Story

“Do your best! Don't give up! Be loved, and love back!” This is what LJ says to encourage kids with sickle cell disease — kids like him. LJ is an advocate for others with the condition (also called sickle cell anemia), fighting to endure the physical, emotional, and mental pain of this disease.  Read more ...

NICU%20Ambassador%20Mateo%208-19-19DSC_3667.jpgMateo's Story

Mateo was born at just 27 weeks and weighed 1.9 pounds. His family was told that he would most likely need a trach tube, so Mateo came to the Nemours Neonatal Intensive Care Unit (NICU) for care.  Read more ...

Maverick update photo option 2.JPGMaverick's Story

Maverick's mother was pregnant with triplets, but the unthinkable happened. Maverick was the only child to survive. He had to be delivered at just 25 weeks.  Read more ...

NICU Promo Nia - 9-5-19 - 1190-Edit.JPGNia's Story

Nia was born with a very rare genetic skeletal dysplasia known as Ellis-Van Creveld (EVC) syndrome.  Read more...

Ryan's Story

Ryan is a 15-year-old high school freshman who loves golf, video games and the beach. A dedicated athlete, Ryan started training for the basketball team with daily workouts after school. He was excited and hopeful to make the team, until he started experiencing pain in his right leg. Read more...

Sadie's Story

When Sadie was only a few weeks old, her family began to notice how weak and "floppy" she seemed and how she didn’t seem to be gaining any weight.  Read more...

Tristan's Story

Before Tristan was even born, his doctors discovered he had a serious medical problem: There were three holes in his heart.  Read more...