With no known family history to speak of we were absolutely blindsided with Thomas’ diagnosis of severe Hemophilia A shortly after his birth. After his 3 day NICU stay where he received fresh frozen plasma, a blood transfusion and factor VIII infusion, the first few weeks of his life were spent with a lot of fear and grief as we wondered how managing his condition would affect both Thomas and our family as a whole.

We were so fortunate to get plugged into Hemophilia of South Carolina within Thomas’ first month of life. Because of the community, education and advocacy efforts of HSC we are refilled with hope that Thomas can still live his best life and that our family can work as a team to rise to the challenge set before us. We are fundraising for the 2020 HSC Turkey Trot because we want to pay it forward. Our desire is that all families who recieve a surprise bleeding disorder diagnosis will have the same access to the information and community that has helped us put our lives back together and find our new normal.