KCNC2 Boo! for Eitan and His Friends in the KCNQ2-DEE Community
I'm raising money for KCA!
I’m thrilled to be participating in KCNQ2 BOO!, a fundraiser supporting KCNQ2 Cure Alliance (KCA)! I’m passionate about this cause and need your help! Every donation—big or small—helps me reach my fundraising goal and directly impacts this important cause.
Here's how you can help:
- Donate: Contribute whatever you can. No amount is too small!
- Spread the Word: Share my fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!
Thank you for standing by me in this effort. Your support means the world to me!
What does KCA do?
The mission of the KCNQ2 Cure Alliance is to empower through education, nurture meaningful connections, and drive innovative research to develop treatments or find a cure for individuals affected by KCNQ2-related disorders.
The vision of the KCNQ2 Cure is a world in which every individual affected by KCNQ2-related disorders, along with their caregivers, researchers, and clinicians, has readily available care, a supportive community, and ample resources. The ultimate aim is to transform the trajectory of this disease, working towards enhanced treatments and, ultimately, the discovery of a cure.
KCNQ2 Cure Alliance provides support to those whose loved ones have been diagnosed with KCNQ2-related disorders, while working with medical and scientific experts, biopharmaceutical companies, our scientific advisory board, and our board of directors to advance treatments that could improve the lives of KCNQ2 patients.
[KCNQ2 Cure Alliance is a 501(c)3 non-profit organization (EIN #47-1810644). All donations are tax-deductible to the extent allowed by law. All donations will receive an acknowledgment letter that serves as a receipt.]
At a recent EEG - 4 years seizure free but the epileptiform brain wave pattern is still present.
Enjoying ice cream after the local all abilities accessible playground and water park in our home town.
My Supporters
- Jonathan Samuels 3 weeks ago $54.00
- Sheery Weizman 3 weeks ago $50.00
- Anonymous 3 weeks ago $31.80
- Alanna Berger 3 weeks ago $38.16
- Anne Goldberg 3 weeks ago $106.00
- Anne Goldberg 3 weeks ago $106.00
- Jonathan Samuels 3 weeks ago $54.00
- Elizabeth Kahn 3 weeks ago $53.00
- Sheery Weizman 3 weeks ago $50.00
- Alanna Berger 3 weeks ago $38.16