New England Hemophilia Association's 2026 Unite Walk

Charlie's Champions

September 26, 2026 10:00am - 2:00pm

Charlie's Champions' Team Fundraising Page

We're raising money for the Unite for Bleeding Disorders Walk!

We're excited to come together to participate in the 2026 Unite for Bleeding Disorders Walk, a fundraiser to support the bleeding disorders community! As you may know, our son Charlie was only 3 days old when he was diagnosed with severe Type A Hemophilia, a rare genetic bleeding disorder in which his blood doesn't clot properly due to a missing clotting factor (Factor VIII.) 

For Charlie, this means even minor bumps or injuries can cause serious external or internal bleeding, especially into joints and muscles. Eric and I administer biweekly doses of medication that help Charlie's body mimic the clotting factor his blood is missing. These treatments help prevent bleeds, protect his joints, and give him the chance to play and grow just like other kids. 

Hemophilia is lifelong--there's no cure yet--but with research, new therapies and community support, we believe Charlie and kids like him could see a cure in their lifetimes. This is why we are walking! All money raised by our team stays within our community and funds crucial advocacy, education, research, and support services. Our collective passion for this cause drives us, and we need your support to make a difference! Every donation—big or small—helps us reach our fundraising goal and directly impacts this important cause.

Here's how you can help:

  • Donate: Contribute whatever you can. Every dollar counts!
  • Spread the Word: Share our fundraising page with your friends, family, and social networks. Let’s spread awareness so we can raise more!

Thank you so much for your support! We couldn’t do this without you! 

$1,212.80

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$5,000.00

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Join My Team

Our Team

Our Supporters

  • Suzanna Rivituso 1 hour ago $50.00
  • Carole Short Love you, Charlie!!! That smile lights up a room!  Aunt Carole and Uncle Ralph 3 hours ago $51.60
  • Ellen DeToma 6 hours ago $500.00
  • Karen Melvin 7 hours ago $103.20
  • JOAN CARR 13 hours ago $50.00
  • Danielle Capawanna A day ago $154.80
  • Molly Mazzaferro So happy to support Charlie’s journey! Love to you all! A day ago $150.00
  • Debora Kim Good luck Soren, Eric & Charlie & your beautiful girls! Ww are rooting for you every step of the way!  A day ago $50.00
  • Tim Johnson A day ago $103.20
  • Ellen DeToma 6 hours ago $500.00
  • Danielle Capawanna A day ago $154.80
  • Molly Mazzaferro So happy to support Charlie’s journey! Love to you all! A day ago $150.00
  • Karen Melvin 7 hours ago $103.20
  • Tim Johnson A day ago $103.20
  • Carole Short Love you, Charlie!!! That smile lights up a room!  Aunt Carole and Uncle Ralph 3 hours ago $51.60
  • Suzanna Rivituso 1 hour ago $50.00
  • JOAN CARR 13 hours ago $50.00
  • Debora Kim Good luck Soren, Eric & Charlie & your beautiful girls! Ww are rooting for you every step of the way!  A day ago $50.00

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