Orlando Creepy Crawl 2021   ○   The Smith Girls

Tina Shannon

October 30, 2021 4:00pm - 8:00pm

My Personal Fundraising Page

My sisters and I walk each year in memory and honor of our father.  Dad was a remarkable man who lived a life challenged by this silent and rare disease.  Unfortunately for us he was taken home to God at the young age of 50, cause of death was complications brought on by hemophilia.  Only now that he has passed and we have all out lived him am I truly beginning to understand how difficult his life was, never knowing when a bump or bruise my send him to the hospital for transfusions until his blood would clot.  The ups and downs of our childhood centered on when and where this disease might rear it's ugly head.  Through donations research has brought about  many medical solutions and  alternatives since the day he passed.  If you have a few dollars to donate please continue to help us help other and their families.  If you cannot donate please pray for the research to continue and the families now battling this disease and those to come in the future.  Thanks for taking a few minutes out of your busy life to share in mine.

DID YOU KNOW THAT 91% OF HFGF FUNDRAISING DOLLARS GO BACK TO THE FLORIDA BLEEDING DISORDERS COMMUNITY?  THOSE DOLLARS SEND OUR KIDS TO A MEDICALLY SUPERVISED CAMP, PROVIDE FINANCIAL EMERGENCY ASSISTANCE AND SCHOLARSHIPS, AS WELL AS CONTRIBUTE TO EDUCATIONAL PROGRAMS AND ADVOCACY EFFORTS. 
 

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My Supporters

  • Alice Heyl October 2021 $50.00
  • Anonymous October 2021
  • Anonymous October 2021
  • Therese Shannon September 2021 $100.00
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My Teammates