Thank you so much for taking a moment to be here and read our story.
I’m walking with The Children’s Heart Foundation for a reason that is deeply personal. On January 5th, 2025, I lost my daughter at just five days old to a congenital heart defect called Tetralogy of Fallot with pulmonary atresia. Losing her broke me in ways I can’t fully put into words. No parent should ever have to experience that kind of loss, and yet so many families do.
My daughter was born in Philadelphia, which is why we chose to do this walk there. CHOP supported us through every step of her short but powerful life, doing everything possible in the fight to keep her alive. The care, compassion, and dedication we experienced there will stay with us forever.
In her passing, we chose to donate her heart and lungs in the hope that she could help other families. That same hope is what carries me forward today. As devastating as losing her was, I want to do whatever I can to help ensure that other families don’t have to walk the same path we did.
This year’s Congenital Heart Walk also marks 30 years of The Children’s Heart Foundation funding critical research that has led to life-saving treatments and surgical advances for children with congenital heart defects. Research is the reason survival rates continue to improve. It’s the reason more children get to grow up, celebrate birthdays, and live full lives.
I’m walking to honor my daughter, to support the families currently in the fight, and to help fund the research that can change outcomes for future heart warriors. Every donation—no matter the size—helps move that research forward and brings us closer to a world where fewer families experience this kind of heartbreak.
Thank you for supporting this mission, for honoring my daughter’s life, and for standing with families like ours. Your generosity truly means everything.