Research Brings Hope to People Living With a Rare Disease

Funds raised through this donation page will help support research of rare diseases at Nemours Children's Health System. Very little government funding is provided for pediatric research. We feel strongly about philanthropy and helping the community understand the significance of donated funds as it relates to medical research.

For any questions or concerns regarding making a donation or fundraising for Rare Disease Day, please contact Grace Carr by phone at (302) 651-4392 or email at  Checks can be sent directly to:

Nemours Fund for Children's Health
Shands House
1600 Rockland Road
Wilmington, Delaware, 19803

Checks can be made payable to Nemours. Please specify that you are supporting Rare Disease Day. 

Questions about the event?  Please contact Terry Pedicone at (302) 651-6819.

Meet our 2019 Patient Ambassador

Julie, our 2019 Patient Ambassador, has achalasia, a rare disorder that impacts the esophagus, making it difficult to eat and drink.

Thank you, Julie, for fundraising, volunteering, and sharing your story.

Search for a Team

or use the search box at the top left of the site to find and support a fundraising team.





Event Supporters

  • Vicky and Bob Funanage A day ago $500.00
  • Brian Polaski 3 weeks ago
  • Mena Scavina Congratulations to all the students who have participated in Rare Disease Day. Thank you for bringing awareness to Kleefstra Syndrome. 4 weeks ago
  • POLYTECH School District 4 weeks ago $320.90
  • Anonymous 5 weeks ago
  • Anonymous 5 weeks ago
  • Anonymous 5 weeks ago $810.00
  • Anonymous Great job spreading the word about Kleefstra to your fellow students! 5 weeks ago
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  • Anonymous 5 weeks ago
  • Delcastle High School 5 weeks ago $802.54
  • Vicky and Bob Funanage A day ago $500.00
  • Hodgson Vo-Tech 5 weeks ago $500.00
  • POLYTECH School District 4 weeks ago $320.90
  • Tariq Rahman December 2018 $250.00
  • EDWARD JAMISON Caroline, Good luck to you and Rohan January 2019 $150.00
  • Anonymous Last month
  • View More Top Donors