Research Brings Hope to People Living With a Rare Disease
Funds raised through this donation page will help support research of rare diseases at Nemours Children's Health System. Very little government funding is provided for pediatric research. We feel strongly about philanthropy and helping the community understand the significance of donated funds as it relates to medical research.
For any questions or concerns regarding making a donation or fundraising for Rare Disease Day, please contact Grace Carr by phone at (302) 651-4392 or email at Grace.Carr@nemours.org. Checks can be sent directly to:
Nemours Fund for Children's Health
1600 Rockland Road
Wilmington, Delaware, 19803
Checks can be made payable to Nemours. Please specify that you are supporting Rare Disease Day.
Questions about the event? Please contact Terry Pedicone at (302) 651-6819.
Meet our 2019 Patient Ambassador
Julie, our 2019 Patient Ambassador, has achalasia, a rare disorder that impacts the esophagus, making it difficult to eat and drink.
Thank you, Julie, for fundraising, volunteering, and sharing your story.