Research Brings Hope to People Living With a Rare Disease

Funds raised through this donation page will help support research of rare diseases at Nemours Children's Health System. Very little government funding is provided for pediatric research. We feel strongly about philanthropy and helping the community understand the significance of donated funds as it relates to medical research.

For any questions or concerns regarding making a donation or fundraising for Rare Disease Day, please contact Grace Carr by phone at (302) 651-4392 or email at Grace.Carr@nemours.org.  Checks can be sent directly to:

Nemours Fund for Children's Health
Shands House
1600 Rockland Road
Wilmington, Delaware, 19803

Checks can be made payable to Nemours. Please specify that you are supporting Rare Disease Day. 

Questions about the event?  Please contact Terry Pedicone at (302) 651-6819.

Meet our 2019 Patient Ambassador

Julie, our 2019 Patient Ambassador, has achalasia, a rare disorder that impacts the esophagus, making it difficult to eat and drink.

Thank you, Julie, for fundraising, volunteering, and sharing your story.

Search for a Team
 

or use the search box at the top left of the site to find and support a fundraising team.

$6,804.98 
achieved

 

$7,500.00 
goal

 

Event Supporters

  • Vicky and Bob Funanage March 2019 $500.00
  • Brian Polaski March 2019
  • Mena Scavina Congratulations to all the students who have participated in Rare Disease Day. Thank you for bringing awareness to Kleefstra Syndrome. February 2019
  • POLYTECH School District February 2019 $320.90
  • Anonymous February 2019
  • Anonymous February 2019
  • Anonymous February 2019 $810.00
  • Anonymous Great job spreading the word about Kleefstra to your fellow students! February 2019
  • View More Recent Supporters
  • Anonymous February 2019 $810.00
  • Delcastle High School February 2019 $802.54
  • Vicky and Bob Funanage March 2019 $500.00
  • Hodgson Vo-Tech February 2019 $500.00
  • POLYTECH School District February 2019 $320.90
  • Tariq Rahman December 2018 $250.00
  • EDWARD JAMISON Caroline, Good luck to you and Rohan January 2019 $150.00
  • Anonymous February 2019 $100.00
  • View More Top Donors