Research Brings Hope to People Living With a Rare Disease

Funds raised through this donation page will help support research of rare diseases at Nemours Children's Health System. Very little government funding is provided for pediatric research. We feel strongly about philanthropy and helping the community understand the significance of donated funds as it relates to medical research.

For any questions or concerns regarding making a donation or fundraising for Rare Disease Day, please contact Grace Carr by phone at (302) 651-4392 or email at  Checks can be sent directly to:

Nemours Fund for Children's Health
Shands House
1600 Rockland Road
Wilmington, Delaware, 19803

Checks can be made payable to Nemours. Please specify that you are supporting Rare Disease Day. 

Questions about the event?  Please contact Terry Pedicone at (302) 651-6819.

Meet our 2019 Patient Ambassador

Julie, our 2019 Patient Ambassador, has achalasia, a rare disorder that impacts the esophagus, making it difficult to eat and drink.

Thank you, Julie, for fundraising, volunteering, and sharing your story.

Search for a Team

or use the search box at the top left of the site to find and support a fundraising team.





Event Supporters

  • Leigha Ray 16 hours ago $5.00
  • Al and Laura Vayda 23 hours ago $50.00
  • Kristy Wells 23 hours ago
  • Caroline Hall I know you guys will do great! A day ago $10.00
  • Rick, Pat & Jeff Celeste Best of luck! A day ago
  • Melanie Mundell A day ago $50.00
  • karen hutter Happy to donate and help you girls out. Good luck! 2 days ago $15.00
  • William Sladek 4 days ago $20.00
  • View More Recent Supporters
  • Tariq Rahman 4 weeks ago $250.00
  • Terry Pedicone Last month $100.00
  • Al and Laura Vayda 23 hours ago $50.00
  • Melanie Mundell A day ago $50.00
  • Nicole Minni Thank you Nemours for your research in helping families find a cure. 4 days ago $50.00
  • Maureen McCafferty 3 weeks ago $50.00
  • William Sladek 4 days ago $20.00
  • Erin Sladek Gaitley Sladek & Jill Jenkins are high school sophomores at Appoquinimink High School raising funds for rare diseases. Hopefully, they’ll have a career in health sciences one day. 1 week ago $20.00
  • View More Top Donors