RSDSA helps those of us with RSD/CRPS. They sponsor summer programs for children, teenagers and young adults. The hold conferences across the country educating Dr’s, Nurses as well as any medical professional, patients & families. They fund research and clinical trials hoping for better treatments and a cure. All of the conferences and fundraisers that benefit & support RSDSA ( a non-profit organization) have been cancelled. Please help me help them by donating to my page so they can continue to help all of us diagnosed with CRPS/RSD.
17 years ago I was diagnosed with Reflex Sympathetic Dystrophy & Complex Regional Pain Syndrome otherwise known as RSD/CRPS. I was clueless as to what that meant and had no idea how it would change my physical life forever.
The internet was fairly new to me at the time but I was able to find RSDSA - the ONLY Resource for those of us with RSD/CRPS at the time. I called them and it started a relationship that I have counted on and have help with fundraising the last 5 years. ( this years cancelled because of COVID).
Jim Broatch answered the phone and answered me questions and talked to me for quite a bit. He then sent me brochures with information that would try to explain what was happening to my body. It was then I learned there is no cure & so began my journey of understanding of Reflex Sympathetic Dystrophy & Complex Regional Pain Syndrome better known as RSD/CRPS.
When your diagnosed with something as painful as RSD/CRPS and told there is no cure you think that's got to wrong. There has to be a doctor who can fix this and so begins your journey for a cure. We go to every doctor we can think of, we keep getting told there's no cure, that we are faking, the only treatments are pain medications, pulse implants and some doctors don't even know what RSD/CRPS.
The fact that so many doctors had no clue about RSD/CRPS which is rated the most painful chronic pain condition in the world today boggled my mind. This had to change. This was one of the main reasons I got involved with RSDSA to co-chair RSDSA’s Long Island CRPS Awareness Walk & Expo.
If you can please make a donation to my page and help me support RSDSA.