RSDSA's First Virtual CRPS Awareness Walk

Sheryl's Shoulders to Lean On

August 22, 2020 8:00am - January 31, 2021 11:59pm

Our Team Fundraising Page

I am Sheryl. My entire life changed on February 21, 1997. About four months later, I was diagnosed with #RSD (Reflex Sympathetic Dystrophy), aka #CRPS (Complex Regional Pain Syndrome), at a time when RSD was widely considered psychological. Sadly, many of us are still treated this way by family, friends, and physicians. Research is so important as can be seen by the advancements made so far, but there still is no cure for this disease which is the most painful condition known to man.

I have undergone too many treatments to count in over 23 years. All of which helped to some degree. About 13 years ago, I had an #SCS (Spinal Cord Stimulator) implanted. In January 2017, I also had a #DRG (Dorsal Root Ganglion) Stimulator implanted. That battery was replaced right before the COVID lockdown hit my community. I have been in need of reprogramming since then, and have been back on medication that I'd rather not be taking.

I have seen that first hand how #PainStealsLives, from the relationships it ruins, to the isolation it causes, and to friends who have succumbed to what is nicknamed the #SuicideDisease, because there is no escape from the pain.

Please, register on my team, donate if you can, and show your support on August 22, 2020. Registration includes a medal. Prizes will be awarded to the largest registered team and the team that raises the most money.

We will be rocking, rolling, and strolling around the block in my neighborhood. This year, the team's theme will be 50s Sock Hop, (Get it Rocking, Rolling, and Strolling? And yeah, I turned 50 this year!) so dig out your poodle skirt or white t-shirt and jeans, and dust off those saddle shoes and cat's eyeglasses. Don't forget to wear something #Orange too! Walk with us here, and enjoy a socially distant malted after at my house, or join us through a FB live at your own place.

I'd love to have you join us here to cheer us on or on FB live whether or not you can register or donate. Please, share the heck out of this. All of the big fundraising events have been cancelled this year due to covid.

Thank you. I appreciate all of you who have been there both literally and figuratively as my #ShouldersToLeanOn  

Our Team

$118.00

achieved

$500.00

goal

of your goal reached

0

days

0

hours

0

mins

0

secs

Recent Activity

Our Supporters

  • Darlene Larue To all us warriors! August 2020
  • Peter Visconti August 2020 $10.00
  • BARBARA VISCONTI August 2020 $10.00
  • Peter Visconti August 2020 $10.00
  • BARBARA VISCONTI August 2020 $10.00