Nolan is an empathetic, funny, and kind 8‑year‑old who has shown extraordinary strength throughout his NF1 journey. He and his mom, Adrienne, were both diagnosed in 2021, beginning a long stretch of specialist visits, monitoring, and learning how NF would shape their lives. In early 2022, a hand tremor noticed by Nolan’s school OT led to a brain MRI, where doctors discovered a low‑grade glioma. Nolan began chemotherapy soon after, facing MRIs, treatments, and countless appointments with a spirit that never faded.
After a period of stability, recent scans showed new tumor growth, and Nolan is now beginning another year of treatment. Even with these challenges, he continues to amaze everyone around him with his resilience, humor, and determination. His journey is a powerful reminder of why research, awareness, and better treatment options are so urgently needed for kids living with NF.
Nolan lives in Bristol with his parents, Adrienne and Seth, and his biggest fan — his little sister Avery. Their family walks with hope for a future where kids like Nolan have safer, more effective treatments and the chance to grow up without the weight of NF.