Steps2Cure NF began as a community-driven initiative to support individuals and families affected by Neurofibromatosis (NF), a group of genetic disorders that cause tumors to form on nerve tissue. Originating as a grassroots fundraising and awareness effort, Steps2Cure NF has grown into a dynamic event series, bringing together participants, sponsors, and advocates across the northeast region - now in 9 locations in 2025! Its primary goal is to foster a supportive network for those living with NF, to enhance public awareness, and to generate funds for patient support programs and critical research. The event symbolizes hope, resilience, and progress in the fight against NF.
NF Northeast is a nonprofit organization dedicated to improving the lives of individuals and families affected by NF through research, education, advocacy, and support services. Founded in 1988, it has played a pivotal role in driving advancements in NF research and ensuring access to resources for patients and caregivers. NF Northeast's mission centers on finding effective treatments and, ultimately, a cure for NF while enhancing the quality of life for those impacted. Looking to the future, the organization envisions a world where individuals with NF can live free of the disorder’s challenges, bolstered by innovative treatments and a strong, informed community.