As the parent of a child with NF1, I am participating in Steps2Cure NF to raise awareness and support for those affected by neurofibromatosis (NF), a genetic disorder that causes tumors to form on nerves throughout the body. The money raised will support the mission of NF Northeast, funding patient support programs, advocacy efforts, and cutting edge research, and will provide hope and help to individuals and families impacted by NF.
NF Northeast has helped me, as a parent, find support from other parents and individuals who have also been impacted by NF and helped me support my child through personal connections and camps.
Your support is more vital than ever due to major cuts to medical research by the federal government.