Imagine being told you have months to live the day after your third wedding anniversary.

I had never heard of Creutzfeld Jakobs Disease (CJD) until my friend Neil was diagnosed last year. You've probably never heard of it either. It's a rapidly progressing, terminal neurodegenerative disease, and there is no treatment and no cure. Unfortunately, 80-90% of people diagnosed pass away within 6 to 12 months from the onset of symptoms. But Neil is tough, and is beating the odds!!!

     I have known my dear friend Christine for over twenty years, and I was thrilled for her and Neil when they married on July 9th, 2016.  It was a beautiful ceremony, followed by fireworks, and I was so happy they were going to be spending many more wonderful years together.  Unfortunately, on July 10th, 2019, almost three years to the day, Neil was given months to live.  

     This disease has left Neil no longer able to walk, struggling to talk, and unable to do all the daily tasks we take for granted.  It has also caused him short term memory loss, but he still has long term memories, and loves to hear about his mischievous past!  Neil has always been a very socialable person, and even though he struggles with conversation, he still loves visits, and a laugh with friends and family, whether online or in person.

     I'm also raising funds because Neil and Christine BOTH walked with me years ago, when I was raising money for the National MS Society.  I know first hand how overwhelming it is when a loved one gets a difficult diagnosis like MS.  Neil's CJD diagnosis is not just overwhelming.  It's devastating. 

     Strides for CJD supports the mission to assist families, educate professionals and fund research for a treatment and cure.  Every dollar raised is a dollar closer to that goal and with your help, I hope to reach my own goal so I can help my friends, just like they've helped me.  ANY dollar amount raised would be so appreciated.  And thank you so much for everyone's love and support!

                                                                                  With Appreciation and Love,

                                                                                                    XO - Beth    
     

$530.00

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$500.00

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My Supporters

  • Anonymous Patricia Stirling October 2020
  • Robyn Younger September 2020 $20.00
  • Kerry Ritter September 2020 $10.00
  • Strides Match Fund This is a matching gift for donations from Whitney Komaniak & an anonymous donor. September 2020 $50.00
  • Whitney Komaniak September 2020 $25.00
  • Bethany Maddix July 2020 $100.00
  • Strides Match Fund This is a matching gift for donations from Whitney Komaniak & an anonymous donor. September 2020 $50.00
  • Enrico Minnetti September 2020 $50.00
  • Judi Rogers September 2020 $35.00
  • Strides Match Fund This is a matching gift for Vic Coates's donation. September 2020 $30.00

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