Our Team Fundraising Page

 

Go Team Neilio!

Come join "Team Neilio" in the fight against CJD!

We will be getting together Sat., Oct 3rd, at 10 am, at North Boundary Park in Cranberry Twp to walk in honor of Neil and his ongoing battle with CJD and to raise much needed awareness and funds for CJD and other prion diseases.

A $10 donation for adults, $5 for kids under 12, would be appreciated. You can donate ahead of time on this link, or in person. We ask that you wear a mask, and practice social  distancing. 

Please RSVP to me at sommerprisby@zoominternet.net by Oct. 1st.  We will be providing donuts and drinks for all the walkers.

Wear your purple and bring a friend! We plan to walk rain or shine, unless 2020 sends us a crazy weather situation (raining frogs, sharknado...).  In that case, we will do a raindate on Oct. 10th!

While we're not able to gather in person this year, we will unite in spirit to raise much needed awareness and funds for CJD and other prion diseases."

Creutzfeld Jakobs Disease (CJD), is a terminal neurodegenerative disease with no cure.  It is a rapidly progressing disease.  80-90% of people diagnosed die within 6 months to a year from the onset of the symptoms. 

Neil is beating the odds!

This disease has left Neil no longer able to walk, struggling to talk, and unable to do all the daily tasks we take for granted.  It has caused him to have short term memory loss, but he remembers, and loves to hear about, his mischievous past.  Neil has always been a very social person, and even though he struggles with conversation, he still loves visits, and a laugh, with friends and family, whether online or in person.  (Socially distanced of course!)

 This is our second year as "Team Neilio" for the  Strides for CJD fundraiser.  Last year we had a great team of friends and family join us at the walk in South Park.  It was an awesome event hosted by Team Golden in honor of their husband/father. Thanks to our generous families and friends, we were able to surpass our fundraising goal of $5,000!  We will miss seeing all the great people we met last year

This year, I have raised our total goal to $6,000, and I'm confident that we can again surpass it!  If we get $1,000 by August 21st, we can have a dedication included on the commemorative t-shirt given to each participant.

Will you participate and/or
become a sponsor this year?

About The CJD Foundation

Creutzfeldt-Jakob Disease is a rare, rapidly progessive neurodegenerative disease, one of several prion diseases caused by prion proteins that misfold in the brain. There is no treatment or cure and the disease is invariably fatal.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by prion disease, raise awareness, and support medical education and research.

We carry out this mission through: 

  • Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series
  • Education and information for families, caregivers, medical professionals, and funeral professionals
  • Advocacy with political representatives and public policy makers
  • Annual Family Conference that brings together affected families and prion disease experts
  • Family Workshops held around the country
  • Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
  • Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
  • Research grant program, with international awardees selected by our Scientific Advisory Committee


 

CJD.  3 letters that have devastated our lives.  With your help, we hope that they will find a cure for this disease, and no one will have to ever hear those 3 letters with fear again. 
 
Neil and I thank you for continuing support, love and prayers.

Our Team

$4,505.00

achieved

$6,000.00

goal

of your goal reached

Recent Activity

Our Supporters

  • The Dunns October 2020 $50.00
  • The Metarkos October 2020 $100.00
  • William and Kathleen Drambel October 2020 $50.00
  • Ronelle Myers Way to go! Wonderful work you guys are doing October 2020 $25.00
  • Anonymous Patricia Stirling October 2020
  • Bill & Sandy Lambert September 2020 $500.00
  • Dan Bolena Neil...miss riding with you my friend, praying for you. July 2020 $250.00
  • Bill Barker Loving our cousin August 2020 $200.00
  • Dave & Val Straight August 2020 $200.00
  • Strides Match Fund This is a matching gift for donations from Diane and John Kristobak & an anonymous donor. September 2020 $150.00

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