Our Team Fundraising Page

Welcome to the Team Neilio 2022  page!

May 15, 2019 we got the devasting diagnosis that Neil has a  Prion Disease. 

June 10, 2019 we were told that it is most likely CJD, and that Neil  only had a matter of months to live.  Creutzfeldt-Jakob disease is a rare, terminal neurological disease occurring in about one in 1 million people annually worldwide. It is usually a very rapid decline and there is currently no cure.

.I am grateful that it is now 3 years later, and Neil is still home here with me. Since August of 2018, I have had to watch this kind-hearted, fun-loving, outgoing, always up for an adventure, man, decline to where he is today. Some of the things Neil loved were spending time with family and friends, entertaining, long drives and motorcycle rides, learning something new,  working with his hands, sports, karaoke, and correcting my Pittsburghese ;).   This horrible disease has taken all of that away from him. He is no longer able to speak, walk or care for himself. He does still knows what is going on around him, and who people are, but is unable to fully communicate with them. 

This is why I am walking for Strides For CJD.  I want to help raise money for research, and see an end to this monstous disease, and it's horrible effect on it's victims and their families. 

I hope you will consider walking with me, or a generous donation.  If you can't do either of those, we will take lots of prayers and good vibes!

Thank you,

Christine and Neil 

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Team Badges

  • Team : Fundraising Achieved
    Team : Fundraising Achieved

    Awarded when a Team reaches 100 % of goal

    Awarded 10/07/2022

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Our Supporters

  • The Partners Alliance October 2022 $106.00
  • Bill Barker October 2022 $50.00
  • Rich King Hope all goes well: love you guys! October 2022 $40.00
  • Anonymous October 2022
  • Linda Sevich I'd love to do a small donation to cause and another for dinner for you two October 2022 $25.00
  • Dan Bolena Praying for you my friend. Miss our rides to West Virginia. You were always as smooth as butter October 2022 $530.00
  • David Straight On behalf of The Pinehurst Cattlemen’s Association, go Team Neilio go!!!! October 2022 $212.00
  • Jesse Prisby September 2022 $109.60
  • The Partners Alliance October 2022 $106.00
  • Ken Leech October 2022 $106.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.