Team Valerie!
The One In A Million, No Cure Disease ... Creutzfeldt-Jakob Disease
For those that never had the pleasure of meeting my mom, Valerie, she was a tremendous woman. Not only was she an amazing wife of 54 years, a mom to 3 children, but also a proud, proud grandmother to two grandsons.
She was a fierce lover of the Pittsburgh Steelers & Chicago Blackhawks, having spent most of the late 50's with my dad attending games and cheering them on. She loved the Lord and read her Bible every morning while enjoying her cup of coffee. She enjoyed cheering on the University of Michigan Wolverine football team and she loved lighthouses, life is good shirts (which she had close to 30), tennis, kayaking, and just sitting around the firepit.
In January 2014 she began showing symptoms of imbalance which quickly turned to memory loss and other symptoms that couldn't be diagnosed properly until I took her to Rush University in Chicago. Trying to process what the neurosurgeon said to me on March 31st, that this Creutzfelt-Jakob Disease has NO CURE, and that typically our loved one has weeks, months, but no more than a year. He was right, after getting a second opinion at the University of Chicago, my mom passed away on May 2nd, 2014.
Since this disease doesn't get the recognition as some other diseases do, it’s even more important to raise money to help find a cure one day and to raise awareness!
Thank you so much for your support ?
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Our Team
- Cynthia Kaye Team Captain $600.00
- Brian Millar
- Todd Brawner
- Kerry Brawner
- Jacob Brawner
- Ramona Ennabe
- Jorge Ennabe
- Lilian Ennabe
- Natalya Ennabe
- Erin Hallstrom $0.00
- Jason May
- john Szwedo $0.00
- Kathy Weidner
- Edward Allard
$1,880.20
achieved
$1,500.00
goal
of your goal reached
Recent Activity
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John Weidner donated $100.00 to Team Valerie
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Deb Muszynski donated $21.20 to Team Valerie
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Tom McEllin made a donation to Team Valerie
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Team Valerie has earned the Team : Fundraising Achieved Badge
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Team Valerie has reached their fundraising goal of $1,500.00!
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Our Supporters
- John Weidner October 2019 $100.00
- Deb Muszynski October 2019 $21.20
- Tom McEllin October 2019
- Kathy Weidner Country Bike Ride to END CJD October 2019 $380.00
- Lori Klemm A wonderful way to remember your Mom, and what a lovely woman she was- September 2019 $200.00
- Ennabe Logistics Inc Team Valerie September 2019 $500.00
- Kathy Weidner Country Bike Ride to END CJD October 2019 $380.00
- Lori Klemm A wonderful way to remember your Mom, and what a lovely woman she was- September 2019 $200.00
- John Weidner October 2019 $100.00
- Claire Rajcevich Sorry to miss the bike ride ad walk this year! September 2019 $100.00