Please join us and walk as we honor and share stories about our Mom - Diane Zorman Jones
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure.
The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. We carry out this mission through:
Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series
Education and information for families, caregivers, medical professionals, and funeral professionals
Advocacy with political representatives and public policy makers
Annual Family Conference that brings together affected families and prion disease experts
Family Workshops held around the country
Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations
Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences
Research grant program, with international awardees selected by our Scientific Advisory Committee