We lost our wonderful mother, Aura Lee Sibenaller, to Sporadic CJD on October 6, 2019, at the age of 56 and only weeks after her diagnosis.  Her loss was sudden and so very heartbreaking.  Her strength and grace through the process was amazing, but not surprising to those of us who knew her.  She was truly the greatest mother we could have ever asked for.  Our family misses her every minute of every day.  Though the money raised won't directly help her, it will go to research for a cure and support for families like ours.  Our hope is that someday loved ones will not have to face this nightmare.  We appreciate any and all donations to the CJD Foundation in memory of mom and all those who have been lost to CJD.

About The CJD Foundation

Creutzfeldt-Jakob Disease is a rare, rapidly progessive neurodegenerative disease, one of several prion diseases caused by prion proteins that misfold in the brain. There is no treatment or cure and the disease is invariably fatal.  The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by prion disease, raise awareness, and support medical education and research.

We carry out this mission through: Family support including a 7-day HelpLine, referrals, support groups, and teleconference speaker series; Education and information for families, caregivers, medical professionals, and funeral professionals; Advocacy with political representatives and public policy makers; Annual Family Conference that brings together affected families and prion disease experts; Family Workshops held around the country; Collaboration with scientists, clinicians, medical centers, health authorities, professional organizations, and international patient associations; Communication of current research and Foundation activities via newsletter, social media, emails, and family teleconferences; Research grant program, with international awardees selected by our Scientific Advisory Committee.