Our Team Fundraising Page

Rose's Story

Our beautiful mother Rose walked this earth with beauty and kindness. Rosie, the 6th daughter of Italian immigrants, married John Kowalski and they were married for over 50 wonderful years, each and everyday they modeled what love is for our family.  They raised 6 rambunctious children whose lives are a reflection of their love and her legacy.  We loved and laughed a lot in our family, and still do. Rose was blessed with 8 grandchildren that experienced the best Grandma K who protected them with fierce and unconditional love. Rose was a wonderful mother, daughter, sister, aunt, and friend to many and her beautiful smile and laughter lit up a room. Rose is deeply missed but we know she is watching over us and guiding us as we finish our time on this earth.

 

UNTIL WE MEET AGAIN

 

To say that this disease is horrible is an understatement. Seven years ago we watched CJD quickly rob Rose and our family of her beautiful life. The questions of how can this happen and why, consumed us everyday as we watched her slip away. Caring for our mom with love was a priority, and we did that, but it did not lessen the fact that we were helpless in saving her because the outcome was inevitable. 

 

We can change that outcome with research and understanding the causes and cure for CJD. Although CJD research has increased over the past few years, awareness is minimal, and there is so much more to know about the treatment and eradication of this rare disease. We all know the pain and suffering that CJD brings to the families and friends of those devastated who are forever changed by this disease. In honor of Rose, we will continue to fight CJD so that others do not have to suffer. BLESSINGS

Text to Give

To donate to our team, text STRIDES2024 to 50155

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Kayla Dwyer October 2024 $21.20
  • Linda Barnes September 2024
  • Sheri Booten September 2024 $250.00
  • Carrie Kowalski We miss & love Rose so much. September 2024 $53.00
  • Tom & Carma Kolinek September 2024 $53.00
  • Sue Murray Please use the name Rose Kowalski on the shirt August 2024 $1,060.00
  • Sheri Booten September 2024 $250.00
  • Hien Zhao September 2024 $106.00
  • Marsha Kaminski August 2024 $106.00
  • Marissa Guhl August 2024 $106.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.